An awareness program on Lysosomal Storage Disorders was organized at AIIMS.

CNN Central News & Network–ITDC India Epress/ITDC News Bhopal: Thanks to the efforts of Mr. Ajay Singh, the Director of AIIMS Bhopal, the institution has been recognized as a Center of Excellence (COE) by the Government of India for the treatment of rare diseases. After receiving COE status, patient registration for financial assistance from government and voluntary organizations can now be done here, making important treatments and services easily accessible.

A awareness program on Lysosomal Storage Disorders (LSD) was organized by the Pediatrics Department of AIIMS Bhopal. Lysosomal storage diseases (LSDs) are congenital errors of metabolism resulting from the accumulation of substrates in various cell types due to defective lysosomal function. They cause dysfunction of the affected organs where they accumulate and contribute to significant morbidity and mortality rates.

Though these disorders are rare, they can manifest from childhood to any age and pose significant life-threatening challenges. According to the National Rare Disease Policy, some treatments are available for these disorders. Early diagnosis plays a crucial role in managing LSDs, potentially saving lives through timely intervention.

By raising awareness about these disorders, the goal of AIIMS Bhopal is to enhance survival rates and improve the overall quality of life for affected individuals. More than 50 resident doctors and staff members participated in the awareness session. The program was organized with the support of Sanofi India.